General information


ECNM Meeting - The European Competence Network for Mastocytosis

19-21 September 2013                                                    

The European Competence Network for Mastocytosis (ECNM) was founded in 2002 as a network of European Centres with specialist experience in mastocytosis. The aims of the network are to promote clinical excellence, education and scientific research into the disease. The network facilitates co-operation between specialties and specialists, clinical medicine and basic science.

Mastocytosis is a rare clonal disease that affects all ages with wide ranging multisystem presentations from skin lesions, allergies, neuropsychiatric symptoms, bone or gut disorders to potentially fatal haematological disorders. As the disease is unusual and because patients may present with diverse symptoms to doctors in different specialities, there is an urgent need for better recognition of the disease across Medicine as well as for the development of new treatments.




Who should attend? 

This three day conference is aimed at clinicians, scientists and allied health professionals with a common interest in mastocytosis.

Course details 

The 2013 annual ECNM meeting, hosted by Guy’s and St Thomas’ Hospital, will be held at Prospero House, in central London, from 19th – 21st September 2013.


Prospero House is situated in London’s bankside area a short walk from Borough market and Guy’s Hospital. It is opposite Borough tube station and a ten minute walk from London Bridge station.

Prospero House
241 Borough High Street

Meeting format 

The programme will include invited talks and Free Communications. There will be an international faculty of experts from Europe and the United States of America, including founder members of the ECNM.

Aims and objectives 

This annual ECNM Meeting is intended to improve the recognition, diagnosis and treatment of patients with mastocytosis, to promote research and help clinicians select the most effective management for their patients.


Thursday 19th September

14.00-14.15          Welcome: Deepti Radia and Clive Grattan

14.15-14.30          Update on the ECNM: Peter Valent

14.30-15.45          Clinical aspects of mastocytosis

  • How, to whom and when does mastocytosis present? To the dermatologist, allergist, paediatrician, or haematologist? 

  • Specialty talks with moderated discussion

15.45-16.00          The patient’s perspective: how to cope with a diagnosis of mastocytosis

16.00-16.30          Tea break

16.30-17.30           Free communications

17.30-18.00           Keynote address: Where next with mast cell activation disorders? Cem Akin

18.30                      Welcome buffet, Prospero House

Friday 20th September

09.00-09.30          Update on diagnostic advances in haematology: Peter Valent

09.30-10.30          Flow cytometry

10.30-11.00          Coffee break

11.00-13.00          Molecular genetics and pathology

13.00-14.00          Lunch

14.00-16.00          Allergy, skin and bone

16.00-16.30          Tea break

16.30-18.30          Gut, brain and neuroendocrine system

19.45                      Evening Reception and Dinner: Governors Hall, St Thomas’ Hospital


Saturday 21st September

09.00-09.45          Keynote address: Update on basic biology of the mast cell: Dean Metcalfe

09.45-10.45          Biomarkers of response to treatment & prognosis

10.45-11.15           Coffee break

11.15-11.45           Update on clinical trials: Jason Gotlib

11.45-12.45           Free Communications

12.45                      Update on the ECNM Registry: Wolfgang R Sperr

13.00                      End of meeting and buffet lunch

Course directors 

The conference co-directors from Guy’s and St Thomas’ NHS Foundation Trust:

Dr Deepti Radia, Consultant Haematologist, Guy’s and St Thomas’ Hospital.

Dr Radia is a Consultant Haematologist at Guy’s and St Thomas’ Hospital, London. She specialises in the management of patients with myeloproliferative neoplasms (MPNs) and manages general haematology referrals, which includes a rapid access anaemia service.

Dr Radia is the lead clinician for the chronic myeloid leukaemia and systemic mastocytosis services. The MPN/mastocytosis service accepts referrals from across the UK and has a number of landmark trials open.

Dr Radia is actively involved in postgraduate medical training and is training programme director for the Guy's and St Thomas' rotation and Chair of the National Specialist Advisory Committee in Haematology.


Dr Clive Grattan, Consultant Dermatologist, at Guy’s and St Thomas’ Hospital.

Dr Grattan is a Consultant Dermatologist at the Norfolk and Norwich University Hospitals and St John’s Institute, Guy’s and St Thomas’ Hospital, London.

His special clinical interests are allergy and the skin: including the pathogenesis and treatment of urticaria and mast cell disorders.

He is currently Chairman of the Dermatology section of the European Academy of Allergy and Clinical Immunology, Editor in Chief of Clinical and Translational Allergy and President-elect of the Dermatology section of the Royal Society of Medicine, London.



Novartis Oncology
Ian Brown


Sponsors details 

Silver sponsor: Novartis

Novartis provides innovative healthcare solutions that address the evolving needs of patients and societies. Headquartered in Basel, Switzerland, Novartis offers a diversified portfolio to best meet these needs: innovative medicines, eye care, cost-saving generic pharmaceuticals, preventive vaccines and diagnostic tools, over-the-counter and animal health products. Novartis is the only global company with leading positions in these areas. 

In 2011, the Group achieved net sales of USD 58.6 billion, while approximately USD 9.6 billion (USD 9.2 billion excluding impairment and amortization charges) was invested in R&D throughout the Group. Novartis Group companies employ approximately 127,000 full-time-equivalent associates and operate in more than 140 countries around the world. 

For more information, please visit

Silver sponsor: Novartis Pharmaceuticals UK Ltd 

Our mission at Novartis is to discover, develop and successfully market innovative products to 

prevent diseases, to ease suffering and to enhance the quality of life.

As one of the largest pharmaceutical businesses in the world, Novartis has a responsibility to protect

and invest for the future. In 2009 Novartis invested USD $7.5bn in research and development.

Novartis Oncology has a strong heritage in cancer care. Indeed, over the past 25 years pioneering

research has repeatedly resulted in new and innovative products, like the cutting edge, rationally

designed, molecularly targeted compounds.


Silver sponsor: Ian Brown


Ian is an established entrepreneur and business turnaround leader operating in the technology and services sectors. Ian is CEO of Axell Wireless a company he created through the acquisition and merger of AFL from the UK, Avitec AB of Sweden and Dekolink of Israel. Today, Axell operates out of 16 offices across the globe and is one of the world’s leading manufacturers of wireless coverage solutions exporting products to over 150 countries. In May 2013 Axell was acquired by defence technology giant Cobham plc.  Prior to Axell Ian was CEO of Redstone plc, a London Stock Exchange quoted telecommunications services provider. Prior to Redstone in 1995 he formed and led Fastnet Group, a network and IT services company that was sold in 2000 returning institutional investors 10 x their original investment. His early career included key positions at 3Com and Hewlett Packard. Ian also operates an independent business advisory practice Consilium Associates Ltd. A keen sportsman and countryside supporter Ian lives in South East England.



There is NO REGISTRATION FEE required for this meeting 



We have negotiated special rates for Conference delegates at The Hilton Hotel, Tower Bridge, which will be the main Conference hotel. To book, call The Hilton on 0203 002 4300 and quote AGUYA to make a reservation. To get these special rates you need to book before 18th August 2013. After then you can book with the same code but the prices may vary.

In addition, we also have negotiated special rates for a number of other nearby hotels. For further details and to make a booking please visit the General Information section of this website.

Conference dinner

The Conference dinner will be held on Friday 20th September at Governor’s Hall, St Thomas’ Hospital, situated near The Houses of Parliament and the London Eye.

Social programme

We have also arranged a tour of The Florence Nightingale Museum, for early evening on Friday 20th September. (limited availability) 


Contact us 

If you have any enquiries about the course, please contact:

Ian Mackie, Events Organiser

Guys and St Thomas’ NHS Foundation Trust

Tel: + 44 (0) 207 188 1622